Thank you @creativesoul! My doctor advised against the shots in the back but cautioned me that the insurance might require it. They didn't which was a nice surprise but probably from all the previous testing I had done before being diagnosed by a new doctor. I may look into the Quell if I haven't screwed up my surgery by postponing. The money scared the heck out of me after taking on debt from the trial and then my husband being out of work for eight months due to an accident. I try not to think about it too much. The infusions sound intense. I've been having problems lately with brain issues like remembering or should say forgetting things and other stuff but question if some of it is from the medicines I'm taking. I do wonder how much heredity may play into it as other family members have similar complaints as does my daughter. She is in her mid twenties and was going to talk to her doctor about it.
I wanted to send you this link on discord but your username does not come up. You probably already know about most of it...but it does explain the connection between the sympathetic nervous system and the limbic system quite well...
https://rsdguide.com/symptoms-crps/crps-memory-loss/
As for family members with chronic pain...brain fog is a common enough symptom. It could also be diet or medications.Cognitive difficulties are the worst because it feels like you are losing your grip on reality...and losing that control is very upsetting. <3
Thanks @creativesoul! There is a lot of contradicting info but that is a good website. I may have already read it but will re-read. You will laugh at this one..the other day I uploaded a lot of photos from my phone and then found I had already done it the day before..gotta laugh! My family have noticed that it has gotten a lot worse lately but could be partially from meds or at least it makes me feel better to blame them. I'm on steemusa and the alliance discord. I thought I was on another one also but forget which it was.
I normally don't push links on anyone...or recommend googling CRPS because of all that contradictory information. At best it should be worth a skim read and a few nuggets of wisdom. I have done that too with photos...lol. The desktop on my computer is a mess with folders within folders of the same stuff. Trying to reorganize them only makes it worse...haha. I will find a link to one of those servers and say hi.
I read a lot after the diagnosis but usually wind up going back and re-reading alot of stuff anyway..lol. I just read your new post and awesome! That is one of those things that wind up to work out even better for you! I hope the Quell works out great! You have me thinking about giving it a try if I can't get my surgery soon. ;)
I am setting my expectations rather high...but am still being realistic. Even so...for me the Quell will be an alternative to surgery. I hope that you consider spending the $250 before going down that far more expensive road. You never know! It does not work on all kinds of pain...but for people with nerve pain and especially CRPS...I truly believe it could be gold. You just need to use it for an extended amount of time. I would rather have 50% relief with something that can be used externally and without the intervention of doctors and hospitals than to subject myself to the horrors and the stress of the medical system once again on the remote chance of getting higher than 50%. The rest of my pain relief will come from lowering inflammatory markers and using natural supplements to lessen the symptoms. Let me know what works for you and we can compare notes... <3
I hope it brings lots of relief for you @creativesoul! I was reading some reviews and saw that it had mixed results but seemed mostly positive from what I could tell. I think adding the CBD oil is good also. I'm waiting for my husband to get his settlement from an accident and then will find out if I can still get the surgery. I will be sure to to give updates when something happens. xoxo
Many of the mixed results are from people who don't use the device properly...don't use it long enough...or really don't have a clue how it works...lol. The rest just seem to be using it for the wrong kind of pain altogether. Anyway...please do tell me when you know more about the surgery! <3