Thanks for the reply! I think you hit on several good points: It's expensive (in addition to costing $50k per year, overall the Marketwatch article suggested that individuals might pay $10k out of pocket); despite approval - additional testing is necessary; and it comes with other health risks.

As the Marketwatch article said, in the end, each patient and their family has to make their own risk-reward evaluation.

To me, it seems that the best thing about this treatment might not be the help it provides for patients, but that it could be a stepping stone to other treatments that can be more effective and less expensive.