"Kids Of The World" | Week 26 | by @olesia & @soulwind " My Nariko Girl & Down Syndrome Awareness Month"

in Steem-BRU (BY-RU-UA)3 years ago (edited)

Hello to all awesome steemian!!!
Especially to @olesia & @soulwind who initiate this great contest here in this beautiful community @STEEM-BRU
I think today is the last day of this week 26 contest, so, Im gonna hurry LOL.

I will share to you a special post today. Because this month of october is Down Syndrome Awareness Month.
Kindly bear with me coz this is a bit long but not that much. Hope you'll finish to the end hehehe.

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My name is Jurich Lexann Nariko O.
7yrs.old at the present

This is my third child, my daughter, we call her Nariko or Koko. When I am pregnant to her, I dont feel anything wrong..It was like normal pregnancy. I really don't know she will have this syndrome until she came out on that day July 26, 2014 in the morning.
I felt so shock that time because I didn't expect it. I have so much mixed emotions and keep on asking WHY's.
But then when I came to her at delivery nursing area. I was so amaze to her, she was sleeping like an angel while the other newborns are all crying hahahha.

Days, months and years go by. It was a great & challenging journey having her in our life. She's fast irritated to a loud environment. She don't like cozy place. But Her beautiful soul, her charming smile was tattood in everyones heart that meets her. She's a sweet girl. She loves hugging. She loves taking a bath, often. She loves having selfie in phone camera. She loves music & She loves joy riding, broom broom.

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Taken at her grandparent's Grandia Van going to airport last July.

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Inside the airplane, She was having a hard time coping while taking off

-WHAT IS DOWN SYNDROME-
Down syndrome is a genetic disorder that can affect many different parts of the body. An extra part or whole Chromosome 21 is the cause of Down syndrome. It is the most common chromosomal abnormality. This syndrome can affect the heart, the brain, the hormone system and the skeleton.

Women who are 35 years or older when they become pregnant are more likely to have a pregnancy affected by Down syndrome than women who become pregnant at a younger age. However, the majority of babies with Down syndrome are born to mothers less than 35 years old, because there are many more births among younger women.

Down Syndrome Causes and Risk Factors
For most people, each cell in your body has 23 pairs of chromosomes. One chromosome in each pair comes from your mother and the other comes from your father.

But with Down syndrome, something goes wrong and you get an extra copy of chromosome 21. That means you have three copies instead of two, which leads to the symptoms of Down syndrome. Doctors aren’t sure why this happens. There’s no link to anything in the environment or anything the parents did or didn’t do.

Types of Down Syndrome
There are three types of Down syndrome:

🔹Trisomy 21. This is by far the most common type, where every cell in the body has three copies of chromosome 21 instead of two.
🔹Translocation Down syndrome. In this type, each cell has part of an extra chromosome 21, or an entirely extra one. But it’s attached to another chromosome instead of being on its own.
🔹Mosaic Down syndrome. This is the rarest type, where only some cells have an extra chromosome 21.
You can’t tell what type of Down syndrome someone has just by how they look. The effects of all three types are very similar, but someone with mosaic Down syndrome may not have as many symptoms because fewer cells have the extra chromosome.

Source: WebMD.com

Do you have also in your family, friends or in school who has DOWN SYNDROME? Kindly comment & Share your experience with them.

Leaving you a sweet kiss from my Nariko Girl!!!
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I want to invite for the next coming WEEK27 contest @aideleijoie, @chy07 & @yoieuqudniram

Thank you for reading that long hehe. Stay safe out there.
Smile,
@jewel89

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All she needs is your love and understanding and everything will be alright. This is a lifetime commitment so be strong always for them.

Yes yes po Tita @sarimanok And all your understanding, encouraging really means a lot to me po kaya Thankyou po 😘😘😘

Ang cute naman ng anak mo ate. 😊

Ganun ba hihihihi Mana saken Kuya @jb123 😁
Thankyou for passing by 😉

Ay opo mana sayo ate. 😊 Youre welcome po. 😊

@jewel89, thank you!

Thanks for accepting my entry 🥰

She's so cute sis. Im loving her since I saw a post aboit her wearing the crochet top you made. I dont have a family member that has a down syndrome but I do have niece who has cerebral palsy. Everyone in the family loves her. I did nanny her when I still don't have my own family. But now, I only have little time to spend for her.

Awwee how sweet you are po sis @yoieuqudniram thankyou so much!!!
How old is your niece now sis? And kamusta na sya ngayon po?

yeah, I dont know pero madali akong ma touch at mapag mahal sa mga batang may down syndrome sis. siguro dahil nadin sa pamangkin ko. she' living with her mother, my sister and my mother in he house just next to us kaso di ko sila masyado mapuntahan dahil busy din ako sa bahay at sa kids. she'll be turning 13 or 14 this sunday sis. gumagapang lang sya at natututo nading lumakad mag isa kaso matatakutin e. yung christmas lights nila nasa room nila dapat naka on din pag gising sya, tapos need nya rin aliwin sa tv.

wow galing teen na pla pamangkin mo sis😍
Same pla ni nariko, matatakutin din. Marunong na sya maglakad pero pgdating s labas ayaw nya maglakad magsisigaw sya ng bongga😅

pero I guess nakikipag communcate naman si Nariko sa inyo sis. yung pamangkin ko ma, wa(lola) ya(kuya) lanag ang alam nya. pag gustong kumain ay mag oopen mouth sya . tapos pag gusting buksan ang tv any mag ta tantrum lang.

Our lovely KoKo and she loves music, magwala if you stop the music.

Until now mi nagagalit sya hehe lalo pg hnd nya type ung music 😄

God bless you baby.

Thankyou po Nay @olivia08 God Bless You Too po 😊

Hello too Ate Met 😍😊

Wow! Nariko's last photo is so cute. I love her smile mommy Jewel perfect ang shot. I am happy nga na hindi naman grabe ang kanyang pagka down syndrome kasi may iba tlagang obvious na obvious. Praying na Nariko can have her learning kasi she is smart and can easily understand. She has empathy as well. A great lover for music, she loves the music One Day the reggae song by Matisyahu.
Kids like Nariko are really special. Love you our Nariko.

Late reply ako ate @aideleijoie 😄
Thankyou so much po ate ko! Malapit napo sya ma enroll sa SPED po pra mas maturuan sya ng activity skills..

Nariko is very blessed to have you Jewel. God bless both of you. Very good post about Down Syndrome. They are equally beautiful just like the rest of us.

Awwee🥰🥰🥰
Daghang endless salamat po sayo Ate ja😘😘😘