I met with several doctors trying to address undividual things. Things that come under the umbrella of EDS are diverse. This past 2 weeks I've seen endocrine, renal, pain doctor, gp, gastro, obgyn,... When they hear connective tissue disorder and a hx of illness they stop listening to specifics and say it's not my area.
I don't know what to do? I either am awarded a treatment for my issues or I should be allowed dignified pain management / control. It is 230 am and I'm done sleeping and so sore. Perhaps from the short distance I went to meet the physiologist and just chatted lol. He is going to help develop some strength to be up right a bit more, introduce some clinical palates...
I need to recondition my muscles to do the job of my faulty ligaments and tendons. My dislocations have gotten worse because my muscles wasted doing nothing. My cspine, thorax, ribs, pelvis, shoulders, knees , right thumb just won't stay in. The pressure on my spinal column has me inclined to lie down, but it only relieves for a while. I can't fucking do this jon. It's my son's birthday. The child care gave him a party yesterday, because I can't fucking do it.
So it's time to try anything.
I listened to Eric Thomas yesterday after you dropped that link.
I'm listening to this now instead of the humm of my own head in the dark while the rest of the fucking apartment block sleeps and I wait for my child to wake for his birthday and I have to dig up enthusiasm to go to an aquarium, when I am aching from walking round the corner. And I will go to the aquarium because he never does anything other kids do with their parents because of me. And we, I, he, will have an awesome time. X