RE: Yes I can! Taking charge of getting better. NOW!
Just really keep coming back to this. I think this is wonderful for you. I really resonate w the frustration and gloom. Im learning so much by having to deal w pain, and really wtf are you gonna do? The way i see it is just giving our best and doing whatever we can think of to help. Allowing the pain to flow through you. To not buy into the sob stories. To not dwell in the past and to press on even if that means pain and death. Like arent we already doing that. Sometimes we may be overtaken w pain and mind attacks but we just need to let that flow through us as well. Im finding practical value from adding some humor w positive beliefs attitudes and empowerment. Also the wim hof can be demenstrated in labs to be very powerful. I have experienced it myself but havent touched the full extent what is possible w his methods. Follow your joy and practically manage the pain as best as possible, while also allowing the fuck this shit attitude to flow through you. Healing is possible and even if thats not our fate at least we can dance to the best of our abilities. Im finding much joy in the present moment and also lil things like a butterfly flying :). Anything is possible. Just sharing a few thoughts and majorly cheering you on. X
I met with several doctors trying to address undividual things. Things that come under the umbrella of EDS are diverse. This past 2 weeks I've seen endocrine, renal, pain doctor, gp, gastro, obgyn,... When they hear connective tissue disorder and a hx of illness they stop listening to specifics and say it's not my area.
I don't know what to do? I either am awarded a treatment for my issues or I should be allowed dignified pain management / control. It is 230 am and I'm done sleeping and so sore. Perhaps from the short distance I went to meet the physiologist and just chatted lol. He is going to help develop some strength to be up right a bit more, introduce some clinical palates...
I need to recondition my muscles to do the job of my faulty ligaments and tendons. My dislocations have gotten worse because my muscles wasted doing nothing. My cspine, thorax, ribs, pelvis, shoulders, knees , right thumb just won't stay in. The pressure on my spinal column has me inclined to lie down, but it only relieves for a while. I can't fucking do this jon. It's my son's birthday. The child care gave him a party yesterday, because I can't fucking do it.
So it's time to try anything.
I listened to Eric Thomas yesterday after you dropped that link.
I'm listening to this now instead of the humm of my own head in the dark while the rest of the fucking apartment block sleeps and I wait for my child to wake for his birthday and I have to dig up enthusiasm to go to an aquarium, when I am aching from walking round the corner. And I will go to the aquarium because he never does anything other kids do with their parents because of me. And we, I, he, will have an awesome time. X
I hear you. There is a peace in the silent background even when the mind/body/world experience is agitated. Happy Birthday lil Blue!!! I just sent you some super duper pain relief energies :). You know this shit is tough. Breathe. I am here for you whenever you need. "The mind is an excellent tool but a terrible boss" Alan Watts